How I Ended Up With Chronic Fatigue | ME/CFS

In this 10 minute video, I share how I ended up developing chronic fatigue and what I plan to do about it this year instead of what I’ve done for the past almost three years… deny, deny, deny and fight it… that did NOT work.

This is kicking off our Chronic Fatigue Thursdays series we’ll be hosting on Instagram and in our newsletter focusing on CF (you can subscribe to HERE!) so that this feels less lonely for all of us dealing with this difficult and debilitating condition.

 

5 Comments Add yours

  1. Deirdre says:

    Thank you for this! I had mono in 2020 and developed Chronic Fatigue. After a few months I found Physical Therapist who is a specialist in it and we worked within my ‘energy envelope’ and developed a paced activity schedule that worked for me. Mine was quite severe so I started with 10 minutes of activity and 50 minutes of rest. An activity was any cognitive, emotional or physical activity like eating breakfast etc.
    Eventually we built it up slowly over many months and now I’m about 90% recovered.
    I can swim, walk and pretty much do my job like I used to. All the best to you! Pacing activity is exactly what you’re doing 🙂

    1. That makes me SO happy!!! I am so thankful you have recovered so much! I have the same hope for myself!!! <3

  2. You are the first person to describe chronic fatigue the same as me. I went to the Dt. In 2016 feeling more than tired, as you mentioned. It turns out that I have lupus and Sjogren’s. Life has been challenging but glad to know that I am not alone. Thank you so much for sharing your story.

    1. Thank YOU for sharing yours with me!!! I have a friend who has lupus and she definitely struggles with chronic fatigue and it breaks my heart, but the good news is… we’re in good company <3 Thank you for reading! XOXO

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