Dismantling Shame | Tourette Syndrome

You know.. this VERY time last year, it was really starting to become apparent that Ellie had to have some sort of… condition, I mean… I didn’t even know what to call it or what to think honestly but it was becoming very clear to us that she wasn’t in control of a lot of…

Hidden Disability Lanyard VIDEO | Tourette Syndrome

Ellie is just the freaking greatest. Listen to her in this short video we created together where she describes why she thinks it’s important to wear a lanyard like this in public if you have a hidden disability. I really let her take the lead on this and she did AMAZING!! All of the links…

It’s NOT Behavioral | Tourette Syndrome Awareness

One of the hardest things about being a parent of a child with Tourette Syndrome is explaining what neurological and involuntary means repeatedly… I’d be lying if I said I wasn’t surprised how many grown adults still struggle with understanding what that actually means even when we break it down in the the most simple terms…

Ellie + Coprolalia | Tourette Syndrome

Hi there 🙂 If you’re reading this.. you intentionally came to my blog through whatever site OR.. I DMed you the link because you asked me the question.. “where did Ellie learn to cuss?”  So, let’s start here. Ellie has Tourette Syndrome. You can read more about that here in a previous post OR go…

Ellie’s Diagnosis | Tourette Syndrome

When Ellie was between 1 and 2 years old.. we noticed some things she did that were a little different and a little awkward. She would blink excessively, she would throw her head back a lot and also tuck her chin to her chest. But gosh – she was the CUTEST little honey butter biscuit…