After almost two years of navigating life with her Tourette syndrome that went from being discreet and mild most of her life to full throttle and front seat, Ellie has taken on a position that will allow her to continue advocating for kids and grown ups just like her! Watch the quick video below to … More Ellie’s NEWS! | Tourette Syndrome
I’m going to be honest, I can’t come from a place of protecting readers by softening what this past year has looked like as the mom of an awesome little girl with Tourette syndrome. If it’s not honest, it won’t help anyone. It will only make those going through a hard time with this … More Taking Up Less Space | Eating Disorder Relapse
It’s a little outdated (2005) so it’ll seem corny compared to something that’s made today – but as far as sincerity goes and allowing kids to speak their mind when it comes to their Tourette’s.. this documentary is a GREAT watch not just for adults, but for kids, too. I believe that when we received … More Tourette Syndrome Documentary for Kids | Tourette Syndrome
*Disclaimer, I am not a medical professional… just a parent sharing the best ways to go about moving forward with finding out whether or not your child has Tourette syndrome or a tic disorder! Pediatricians and neurologists are the best possible people to help you find out what’s going on! 🙂 Just for reference… we … More If You Think Your Child May Have Tourette Syndrome, Do This!
Last year when everything REALLY intensified in the Spring with Ellie’s Tourette Syndrome… I was just trying to figure out what it even was and spending countless hours and hours and hours researching and Googling and TikToking and Instagramming trying to immerse myself in the world of TS. As a mom, I felt an urgent … More Customizable Templates & Printables | Tourette Syndrome
You know.. this VERY time last year, it was really starting to become apparent that Ellie had to have some sort of… condition, I mean… I didn’t even know what to call it or what to think honestly but it was becoming very clear to us that she wasn’t in control of a lot of … More Dismantling Shame | Tourette Syndrome
Ellie is just the freaking greatest. Listen to her in this short video we created together where she describes why she thinks it’s important to wear a lanyard like this in public if you have a hidden disability. I really let her take the lead on this and she did AMAZING!! All of the links … More Hidden Disability Lanyard VIDEO | Tourette Syndrome
One of the hardest things about being a parent of a child with Tourette Syndrome is explaining what neurological and involuntary means repeatedly… I’d be lying if I said I wasn’t surprised how many grown adults still struggle with understanding what that actually means even when we break it down in the the most simple terms … More It’s NOT Behavioral | Tourette Syndrome Awareness
Hi there 🙂 If you’re reading this.. you intentionally came to my blog through whatever site OR.. I DMed you the link because you asked me the question.. “where did Ellie learn to cuss?” So, let’s start here. Ellie has Tourette Syndrome. You can read more about that here in a previous post OR go … More Ellie + Coprolalia | Tourette Syndrome
When Ellie was between 1 and 2 years old.. we noticed some things she did that were a little different and a little awkward. She would blink excessively, she would throw her head back a lot and also tuck her chin to her chest. But gosh – she was the CUTEST little honey butter biscuit … More Ellie’s Diagnosis | Tourette Syndrome